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Information for Sinemet Users

There  have been some recent announcements regarding Sinemet that our Parkinson's clients should be aware of.  Please read about those changes here as well as about Merck Canada's Sinemet Patient Assistance Program.

 

Save the Date!

Our biennial conference on Parkinson's will take place on Saturday, April 14th and will feature J. Eric Ahlskog, Ph.D., M.D., Professor of Neurology at the Mayo Clinic, and Dr Matthew Farrer, Canada Excellence Research Chair in Neirogentics and Translational Neuroscience at the University of British Columbia. Watch for information in the new year!


VEPC Seeks New Board Members

Are you someone with epilepsy or Parkinson’s?  Are you a friend or family member of someone with epilepsy or Parkinson’s?  Do you have skills that could contribute to a nonprofit Board?


The Victoria Epilepsy and Parkinson’s Centre (VEPC) is a vibrant and welcoming non-profit society whose purpose is to strengthen clients’, families’ and communities’ ability to manage the physical, psychological and social effects of Parkinson’s and epilepsy.  VEPC is managed by a volunteer Board of Directors made up of people living with epilepsy or Parkinson’s and professionals with an interest in the two disorders.  Board members are appointed for an initial one-year term followed by two-year terms.  Each Board member is expected to serve on at least one Board committee.  The Board of Directors provides overall direction for the organization and is responsible for ensuring VEPC’s programmatic and fiscal health and accountability. 


VEPC is currently seeking new Board members.  We are particularly interested in individuals with backgrounds in finance, fundraising, and public relations.  We are seeking people with strong ties to the local community and an interest in epilepsy and/or Parkinson’s.  Board members are typically selected by the current Board of Directors and approved by the General Membership at VEPC’s Annual General Meeting.
If you have knowledge and experience that will assist VEPC as it grows to meet the needs of growing populations of individuals with epilepsy and Parkinson’s in the Victoria Capital Regional District, we encourage you to apply to join VEPC’s Board of Directors by contacting us to request an application. 


You can reach VEPC at (250) 475-6677, help@vepc.bc.ca, or visit our website at www.vepc.bc.ca

 

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Get Ready for Purple Day
 
 
 
Purple Day for Epilepsy (Purple Day) is held each year on March 26 and this year on March 24th you can join in and help with Victoria's first annual Plane Pull for Epilepsy. This one day event - the Viscount Air Plane Pull for Epilepsy - will see teams gather together to raise pledges in support of the Victoria Epilepsy and Parkinson's Centre Society (VEPC) and join in a fun and engaging day of competition and camaraderie at the Viscount Aero Centre, located near Victoria's International Airport.

 

Be a part of the fun of this first time event that will capture the attention, minds and hearts of the community and pull together for a great cause!  See the website at www.victoriaplanepull.ca.

 

 

 

Class Action on Neurontin

Individuals with epilepsy who have taken Neurontin, should be aware of a Class Action law suit currently underway.  Please read more here.

 

Epilepsy Conference

 

Standing Tall for Epilepsy:  Rights and Research

Saturday, Nov. 5, 2011
9:00 a.m. – 3:30 p.m. Check-in starts at 8:30
Michelle Pujol Room, SUB, University of Victoria, plus 3 breakout rooms
Parking: Pay parking in UVic lots, $6 for whole day

This year’s conference has two themes: on the medical front, our keynote speakers will forward our understanding of some of the psychiatric disorders of people with epilepsy, and give an overview of epilepsy diagnosis and treatment. On the personal front, we have invited specialists to discuss legal, educational, and employment issues to help individuals and families, offering practical, achievable strategies for living better with epilepsy.

Keynote Addresses on Epilepsy Research and Diagnosis

Dr.  Mary Connolly (pictured above), Neurologist, Clinical Professor of Pediatrics, UBC, Director of Pediatric Neurology Program at BC Children’s Hospital
Dr. Connolly will speak on her research concerning psychiatric disorders of people with epilepsy. She will discuss how her current research is leading to better understanding and treatment and the potential implications for improved quality of life for children and adults living with epilepsy.

Dr. Kristen Attwell-Pope, Neurologist,
Dr. Attwell-Pope, through a series of actual case studies, will discuss how a diagnosis of epilepsy is made and how treatment is determined.

Special Guide Dog Demonstration
Gloria Peckham, head trainer for seizure dogs at the Lions Foundation of Canada Guide Dogs, will give an information session and demonstration (by our local seizure dogs) on how these highly valuable dogs are  selected or bred as puppies, raised, and finally trained as service dogs. She will also talk about how the owners must be specially trained as well when they are matched with their dogs.

Your Rights in Action

Civil Rights: Using our newly published book Epilepsy and the Law, Annie Banks, Vancouver Island Human Rights Coalition, and Erin Pritchard, Together Against Poverty Society, will provide information on your civil rights in BC in a number of areas: benefits, employment and workplace, education, accommodation, and others.

Education: Kristin Sinclair, from the UVic Education Department, will offer a workshop on navigating the education system, to ensure you are receiving the full benefit of the programs and options available to students here in Victoria.

Employment: Bev Anderson and Beryl Swan from TYES will offer a workshop on training and employment options and opportunities in BC.

Community: Isa Milman, former Epilepsy Coordinator at the VEPC, will offer insights on developing the Victoria community for people with epilepsy. She will use her recent work through the UVic Faculty of Fine Arts Writing Program as an example of involvement, sharing, and growing together.

Download our poster and registration form, or call to register over the phone using your credit card.  Registration is $35 for members and $50 for non-members.  Subsidies available.

VEPC would like to thank UCB Canada for its generous support of this conference.