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Victoria Epilepsy & Parkinson's Centre

Epilepsy Blog

Clobazam (Frisium) Shortage Update - May 12, 2016

Over the past few days we have had reports that pharmacies are having difficulty getting clobazam from their suppliers. This suggests that the clobazam shortage is worsening. The best source of information about the supply of your medication is your pharmacist.

The situation will vary from one drug store to another, depending on the amount their supplier has available, whether the pharmacy keeps stock of this drug on-hand or orders it as needed, and other factors.

There are 3 manufacturers of clobazam:

  • Apotex Inc. (Apo-Clobazam)
  • Teva Canada Ltd. (Teva-Clobazam or Novo-Clobazam)
  • Lundbeck (Frisium)

See below for estimated resupply dates.

Pharmascience discontinued PMS-Clobazam in April 2015.

What should I do if I take clobazam (Frisium)?

If you or one of your family members take clobazam, we advise that you contact your drug store and ask about the supply of this medication.If your pharmacy is unable to refill your prescription, another pharmacy may be able to.

  • Contact your healthcare provider for medical advice if you are unable to get your prescription refilled.
  • Clobazam is a benzodiazepine and should not be stopped abruptly.
  • If clobazam is unavailable, your healthcare provider may prescribe an alternate drug to prevent benzodiazepine withdrawal and to control your seizures.
  • Work closely with your healthcare provider and your pharmacist throughout the shortage.

If you need information or assistance regarding a drug shortage, please contact your local epilepsy agency by calling 1-866-EPILEPSY (1-866-374-5377).

Estimated Resupply Dates:

Apotex Inc. posted a shortage of Apo-Clobazam in early December on drugshortages.ca. No explanation has been provided. The estimated resupply date for Apo-Clobazam has changed multiple times, initially it was April 15, 2016 then it was extended to September 1, 2016. The newest resupply estimate is November 30, 2016.

Teva-Clobazam (also called Novo-Clobazam) from Teva Canada Ltd. is also on back-order and new shipments are not expected to be available until September 30, 2016.

Frisium is on allocation, so pharmacies can only order limited quantities.

There have been no reports, so far, on drugshortages.ca from Teva Canada Ltd. or Lundbeck.
 

Posted by Suzanne Nurse,Chair, Canadian Epilepsy Alliance Dr on 25th May 2016 11:54am

Seizure Investigation Unit

My name is Jessica.  I have had Epilepsy for the majority of my life.  I have always been offered the chance to go to the Seizure Investigation Unit but as you can imagine, I was too afraid.  I mean I haven’t been off medication for 30 plus years. Recently, I have decided to go to the Seizure Investigation Unit in Calgary (Only because the Vancouver waitlist was so long and they are short-staffed in specialists at the moment).  When I was trying to find information about someone’s experience in the unit, I found it almost impossible. 

Last week my husband and I received a letter stated within 6 months, I will be admitted.  I want to document this experience.  If you have ANY questions at all that I could possibly find the answer to while I am in the hospital or just everyday question regarding the Seizure Investigation Unit, please email Lindsay Beal and I will try to answer these questions the best that I can. 

Knowledge is power.  Let’s find it together.

Posted by Jessica on 21st Apr 2016 10:04am

Tools for Success Graduation

Congratulations to all the students who participated in this year’s Tools for Success program! The parents, tutors and volunteers are so proud of each of the students. One parent noted that this was the best year yet! We had a nice time celebrating their achievements during the last tutoring session with certificates, balloons, and punch.

 



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Posted by Sonya Dhudwal on 1st May 2015 8:35am

Teens, Epilepsy, and Driving

When it comes to being a teenager, obtaining a driver’s license and having the ability to explore the terrain with the use of a motorized vehicle can be high on the list of things they typically look forward to. This may not be the reality for some teens that experience seizures during the daytime, unfortunately. It is not the end of the world, although it may feel that way. It likely seems extremely unfair to be prohibited on this rite of passage, but the stipulation is in place for obvious safety reasons. Please know that there may be the potential for getting a license issued if seizure-free for a period of time, depending on your individual situation. Matters taken into consideration include medication adherence, type/frequency of seizures, and the time of day of your seizure activity.



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Posted by Sonya Dhudwal on 6th Jan 2015 10:52am

Eat Well, Exercise & Supplement to Save Your Bones!

This article is written to help readers better understand bone health.

**The article should NOT replace a discussion with your doctor about your specific medications, supplements and health needs.**

Many of us have images of bone as solid, inanimate structures (like porcelain or wood) over which we have no control. Well, these images may not give enough credit to the remarkable living structure that bone really is! Given the right conditions, bone re-grows throughout adulthood. Eating properly, exercising, and learning more about your medications for epilepsy can help keep your bones stronger and healthier!



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Posted by Jonathan L. Cox, B.Sc. Pharm, Co-owner on 31st Jul 2014 2:42pm

Seasonal Safety Tips

BC Epilepsy Society
#2500-900 West 8th Avenue
Vancouver, BC  V5Z 1E5
Phone: 604-875-6704
Fax: 604-875-0617
outreach@bcepilepsy.com
www.bcepilepsy.com

The BC Epilepsy Society empowers, educates, and supports British Columbians living with epilepsy.



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Posted by BC Epilepsy Society on 23rd Jul 2014 12:08pm

Using the taxi saver program with a seizure dog

There are an increasing number of people who use seizure response guide dogs, as well as other registered service dogs. Most members of the public love to learn about service dogs and having a seizure response guide dog is often a great way of educating the public about guide dogs and seizures. However, owners of guide dogs sometimes experience difficulties when they really shouldn’t. If you have a registered guide dog, that dog can accompany you anywhere that a pet may not be allowed- grocery stores, doctor’s offices, buses, etc



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Posted by Jennifer Morgan, Epilepsy Program Coordinator on 31st Mar 2014 11:05am

SERIOUS SKIN REACTION ALERT-CLOBAZAM

Drug safety warning for CLOBAZAM 



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Posted by Sandra Graham, Community Awareness Coordinator on 26th Feb 2014 11:48am

Tips for the person with epilepsy

I often have seizures clusters, meaning over the course of one to three days I will have several seizures a day. When I have seizure clusters I relax.  Learning to relax is something I have had to work at, just as I am sure many of you have also struggled with. The following are some tips I have come to learn over the years in better managing my epilepsy symptoms. Part of this has come from letting go of my expectations of managing everything on my own, learning to ask for help, forgiving myself if everything doesn't get done and simply remembering to have fun. 



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Posted by member submission on 17th Feb 2014 12:00pm

Tips for the caregiver, caring for someone with epilepsy

These are tips that my husband has used to support me while I am having a seizure. My husband, as have my friends, have taken supporting me all in stride. The following are examples of how my husband and friends have supported me day to day, while out and about, at home, during concerts or out for coffee. The key has been to not let having seizures be the focus. Most importantly, remember to have fun.

Please note: I use the name caregiver to describe someone who takes charge when I am having a seizure, someone who goes with me to appointments and is there when I need them to be there for me. It could be a family member, acquaintance or even a stranger.

 



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Posted by agency member on 10th Dec 2013 12:52pm

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